Anna Owen

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Flash back to right before Josie’s 3rd birthday when she first started walking

It’s hard, but it’s worth it

Two weeks to flatten the curve! Lollll remember that??

What a dork lol

It’s amazing how your life changes without you meaning to. We got to stay at Give Kids the World on Josie’s wish trip. What a wonderful week it was #makeawish #wishkid #givekidstheworldvilage #givekidstheworld #disney #disneymakeawish

Peanut butter is her favorite snack. Five years ago, they put a tracheostomy tube in her neck and said “she anatomically will not be able to talk because of where the tracheostomy sits and where her voice box is” Josie said “oh yeah? Peanut butter” Take that!! Josie’s mode of operation is “if they say I can’t, watch me do it anyways!” Also, she got it in her head that putting the pb in the microwave for 3 seconds makes it better 🤷🏽‍♀️

In other news, our chickens are finally giving us eggs again

When she saw the phone in my mouth, she said “ewww” 😂

Not the news we wanted, but not surprising If you scroll way back on my page from last summer, you’ll see a time at Six Flags when Josie’s trach came out for houuuurs. It made us question why she still has one if she was perfectly fine without it at the park. Well…after speaking to our ENT, he confirmed that her airway is still way too small to function long term without the help of a trach. If we were to prematurely get rid of her trach, she could develop severe obstructive sleep apnea where her airway would be blocked while she was sleeping. He also officially diagnosed her with laryngomalacia and tracheomalacia where her lungs and trachea collapse in on itself if not propped open with the trach. Fun. We have known for a while that it was an issue, but we’ve officially put a name to it. Long story short, she will have this trach for a whiiiiiile. It’s way easier to intubate for surgery if she has a trach, and she has several surgeries left in her life. Therefore, we will stay the course as is.